On 12/26/14- my family of three became a family of four. Our baby boy, Travis, has left coronal synostosis (a version of Craniosynostosis) and will need surgery to fix it.
I have come to the conclusion that God thinks we are superheros- and who am I to doubt that?
Easten has had 5 surgeries in his short 3 years of life, i have had two c-sections, and now our angel baby will have to have at least one before he even learns to crawl. Luckily John hasnt neeeded any surgeries (which is surprising with how accident prone he is!)
Are we scared? YES... But we have met the Craniofacial team at Walter Reed- and they are amazing! We are part of support groups- and have heard of so many success stories- which is OOBER comforting. His Surgery is March 30. All we ask for is that you hold your kiddos close, and send up some extra prayers for our family.
So let our adventure start with our cranio baby!
go to craniocarebears.org.... their page explains craniosynostosis